Monday, February 27, 2012

March 2012 is Epilepsy Awareness Month

March 2012 is Epilepsy Awareness Month. National Epilepsy Awareness Month includes a range of events, community activities and media campaigns to raise awareness and improve understanding of epilepsy. The month will culminate in Purple Day on March 26, when everyone is encouraged to wear purple for epilepsy.




I will be wearing something purple not only to Support Epilepsy Month, but I am someone who also suffers from having Epilepsy. Will you join me?







I am excited because I spoke to someone in HR at my work today to see if we can do something at work for this in the company and they are going to see what we can do. Even putting it in our newsletter would be an awesome way to spread the word. So I am hoping we can get something out there in the company. It would mean a lot to me. 

Saturday, February 25, 2012

And yet another one out of no where........

So the last week I have been doing well on my new dosage of Topamax and my dizziness had gone away and I have been feeling great. Last night I was down stairs and I began shaking/shivering as if I was extremely cold and I wasn't.So I came upstairs and layed down into our bed and Em came out of the boys room and I remember telling her my head hurt and I went into a grand mal but it was different this time. I remember Em being with me and hearing her talk to me. She said it was worse than the last one I had and seemed very different. I was making a weird noise through my mouth and was having a hard time breathing. I didn't lose conciseness and kinda remember a good amount of it. It was very weird one this time. I also bit down on the side of my tongue pretty hard this time too.

I was very sore and groggy this morning when I woke up. But this whole thing is freaking me out. I have been doing so well and bam, another one. I just don't understand it. I am still getting used to the idea of living with Epilepsy. So I will be making another call to Dr. Rai Monday to let him know what happened. All day I have been freaking out as to why all of a sudden. It bums me out and I know that Emilee is worried as well.

Yet just because I am on meds and am "trying to eat better" is starting to make me think that I am not doing my best to get healthier. I was reminded today by a friends dad of a few things I need to do that will really make a hell of a difference and one of them is to quit smoking.. I need to do it, no excuses and with it I need good back up support as Emilee is also a smoker which makes it hard. I also want to try cold turkey.  A picture my daughter sent me recently was a good reminder of 3 inspirations I have to think of daily for me to be a better healthier man, father and person.


I have a lot of things to consider and reflection to do on my current actions and the new ones I want to accomplish to achieve better health.

Friday, February 24, 2012

EDD is the root of all evil and mistakes


So irritated right now with EDD. I have been trying to get a hold of them already to find out where my check is at and each time I call, their customer service line is "The maximum number of callers have been reached, please try calling again later." than goes to a fast busy. Are you kidding me? All morning it's been the same thing. Where the hell is my check!! 






My claim was sent last Saturday, and I should have had my money deposited by now. Doesn't the state understand it's hard enough for a family to be taken care of when someone is on disability yet they make you jump through hoops and have delays in getting your money. It honestly shouldn't be this hard in this day and age, especially with the technology that exists. 



Makes me so irritated that I just can't get anyone on the line to find out a status, that's all I want. But now I want to give them a piece of my mind. 

***Updated, and this is a good one!!!***

So after several more attempts of calling EDD, I finally get someone on the line and she informs me that the they show that they have my LOA date ended on 02/08/12. I had the same copy that my doctor sent to them, the medical certification form that they send in and that date was not on there and I informed her. She started to research the issue and placed me on hold and then click, I was disconnected. Seriously??? 

I called back and and luckily was able to get someone pretty quickly and explained everything all over and she immediately wanted to argue with me about it and than her co worker interrupted her who happen to be the same lady who I was just on the phone with and she informed her that there was a mistake in the system. 


Opps I was told. But she quickly apologized for the mistake and corrected it and confirmed that tomorrow I will have funds available from the 9th to today direct deposited. She also was very sympathetic once she realized it was their mistake and even commented on how the people she works with make mistakes like this all the time. It was such a relief to hear that the issue was resolved and that I will be paid tomorrow because we didn't know what the heck was going on and I was stressing out about it big time. 

I know people make mistakes, but that was a big one and it's making me wonder how often this occurs to those on disability. People really count on their pay while they are recovering from an illness, injury etc and the last thing they need to be stressing about is finances. 

Well at least my issue got resolved today right before the weekend and I can relax now. 

March 2012 is Epilepsy Awareness Month



I will be wearing purple on March 26th, will you join me?





Thursday, February 23, 2012

What Dizziness???

So it's been over a week since my last post. I went and saw my doctor to discuss my concerns of the dizziness I was having and how bad it was. My doctor believed that it was actually small "triggers" of a seizure starting and ending quickly. These made me lose focus and sometimes lost my focus of thought. He urged me that I needed to go up on my dosage of meds back to the 100mg and highly recommended that before switching to a different medication since the medication I am now on won't have me gain weight as most of epilepsy medications do that.

So since I have been on my new dosage it took a few days to adjust but and had 2 days of major dizziness, but after that it's been gone for the last 5 days. :) So that is great news. But with the newer dosage, the doctor wants me on it for a month and extended my LOA by another 4 weeks. I will be returning to work on March 19th. He wants to know that I will be able to return to work with no issues what so ever especially since I will be taking the train and walking to the station. So looks like more time to adjust and time to spend with Em and the kids.

I also have lost 31pds since November and I am very happy about that. I am also hoping with this extra time to continue my walks and maybe start jogging if my back improves. But that's a whole other issue as the meds didn't seem to do anything for my back so I see the specialist again in 2 weeks. Here is a new picture of me and you can really see in my face how much I have lost.



I am so stoked though about the weight loss, but I still feel lazy and really need to dig down and eat better to really make something last out of this. I am also hoping if all goes well that I can get my DL back in June or July. So that's my health update. Still making a lot of progress and loving it and making good strides.

Monday, February 13, 2012

Been having some major dizzy spells lately.

So lately I have been having some major dizzy spells lately and they have gotten to the point that I seriously thought I was going down for the count. They have been mostly been when I have been standing, but some while sitting and even while laying down. So I don't know what this is all about. Calling my doctor about that today. It's been going on for at least more than 4-5 days, so I am really starting to get concerned. Other than that, I am pretty much feeling fine other than having issues waking up for good periods of time through out the night. 

My daughter commented on how much weight I have lost in my face and stomach yesterday and it was really cool to hear. So I am still working on that and eating better and making sure I am more active. Em took this pic of me on Saturday and you can really see that my double chin is almost gone! :)



Em and the boys are all sick with a cold today, so it's my turn to take care of them, I just don't want to catch it as I leave in 2 days for my trip and don't want to be sick for it. That's all for now. Got phone calls to make, want to start packing today and get some Valentine's day stuff ready. Have a good day all!


Updated:
Talked to my doctors office (Neurologist) and will be going in tomorrow to discuss these dizzy spells and also talk about extending my LOA. 

Friday, February 10, 2012

Was quarantined ealier this week

So up till about yesterday I was pretty much quarantined in my room with the stomach flu, so I haven't been online much at all lately. I hate the stomach flu, I really really do. Not a good way to spend time while you are already off work. But I am better now and that's all that matters.

I just got done playing kick ball in the street with my boys for about 35 minutes and wow, did that wear me out. It's tough keeping up with them, they have so much energy. I need to keep on the path of losing weight and getting in shape to stay on track with those 2.

I am stoked that I reached my goal and my trip is taking place next week. Thank you to all that has helped out. I will be flying to Phoenix next Wednesday through Sunday to see my best friends and godsons. I really can't wait to see all them and have a me trip. I will miss my family however. I did make sure that I was home for Valentine's day cause I have something special planned for Emilee. :)

I do have to admit that I am doing loads better. The medication still is working and I haven't had any seizures since the 17th of Jan. I am still losing weight and it's awesome when people stop and actually recognize it and tell me.

I took the steroids for my back and that didn't help any bit at all. So I have to follow up my the specialist again.

So that's my recent update for this week, but lastly, my daughter is coming for this weekend and I am SO happy to see her. I promised her we will watch National Treasure 2 tonight and I am looking forward to spending time with her. Have a good weekend everyone!

Saturday, February 4, 2012

MRI results from my Back

So this last Thursday I went and saw Dr Shoji in Riverside to get the results of my MRI I had on my lower back. As some of you may know I have had suffered from chronic back pain for years now and as I get older it gets worse.

It started when I got injured in the Army and had 2 good accidents when I worked at Ganahl Lumber. Since I am on LOA I talked to my doctor more about it and since the car accident in December it's gotten worse and he reffered me to a back specialist/surgeon to finally get someone to look at it. Had the MRI done and went Thursday to get the results.

The doctor informed me that from the middle of my spine all the way down I have arthiritis and that's not common for a guy my age but considering the accidents and that I have gone untreated for some many years that's why it's there. As for any injured discs, there are a couple that are 'bulging' due to the artiritis but that is going to be healed with some medication. The good news is that there will be no need for me to have surgery and that is something we are happy to hear!!!

The doctor is putting me on 2 medications. One is called Methylprednisolone which is a steroid that I will be on the next 6 days to help with the arthritis in my spine and that should help take care of that. This medication is used to treat severe allergies, arthritis, asthma, and skin conditions.

The other medication I will be on is Naproxen 500mg to help with the osteoarthritis. I am finally glad that I got in to a specialist to get some treatment for my back. Hopefully this improves everything and I will be more mobile in the future, especially with the kids. :)

I will have to have another MRI in about 2 months to see the results of this treatment. So keep your fingers crossed that it helps.

17 Days Left....

So I just realized I have 17 days left of my medical leave. I can't believe how fast it's going and as I sit here thinking about it I am starting to get nervous as I am not sure if I will be ready to come back. I have my good days and bad days. Today, I am just having another bad day.

I am really trying to get some rest, and for the most part I feel restless. It's nice getting to spend time with Em and the boys. Going on walks, spending time with them more. Helping Tyler with his homework. Getting alone time with Jacob while Tyler is in school.

 

I know they have been loving the time with me since I have been home more. For instance Jacob is cuddled up on my right now as I am typing this with his head on my shoulder and it's awesome. I am gonna really miss all this. I do have the option to talk with my doctor and feel that if I am not physically ready to extend my leave for a few more weeks which is something I may do since I am already getting freaked out about it. When I left on my leave the stress I was under was just to much for me to handle and I believe that was such a large trigger for my epilepsy that I want to make sure when I come back I am mentally ready for it and not just through myself back into the same routine and end up in the same situation I was in prior to my leave.

I have a lot to do this week. Seems that my insurance hasn't covered all my visits to the ER as I received 3 bills stating I owe for services rendered and I need to call Aetna and figure out whats going on. I hate dealing with them. I also filed with Unim Accidental insurance that I have for my car accident in December and have to get copies of all my ER, Doctor, receipts etc and get those faxed over to them. It's just time consuming to get all those items together.

I am really looking forward to booking my flight to Arizona to go see Marlo and JT and see my Godsons and visit some really good friends while I am out there as well. It will be nice to be out there again and see everyone. I really wished we lived closer.

Today we are gonna have a lazy Saturday because our plans we had fell through. So might be a Redbox type of day. Who knows. Hope everyone is well.