Sunday, July 29, 2012

Posting this for my daughter - Please help her



Hi everyone! I am doing a 5k to support my daddy and have setup a page to raise money for Team Barton. My goal is to raise $200.00 by October 28th. This will be my first 5k for Epilepsy and we are doing it as a family and as Team Barton!!! ♥♥♥♥ Feel free to share this with others so we can spread the awareness and get Team Barton to reach our goal. Thank you everyone! Even a $5 donation would be awesome!!!! I only have $135.00 to reach my goal!!!!! Please help spread the awareness and sponsor me!!

If you would like to sponsor me, you can go to: Walk to End Epilepsy - Kaitlynn's Page


Please help my daddy, he is still having seizures and donating to programs like this bring in money for research and treatment.

Saturday, July 28, 2012

I feel like a truck hit me..Rough 3 days

So after having 2 petite seizures at work I was sent home since I could bare keep my thoughts together.

I feel like I have been hit by a truck this morning! I had 2 more seizures late last night. One lasted 2 minutes and the other 40 seconds. Kaitlynn is such a strong kid, she witnessed them both and got Emilee and together they helped me take my meds and Kk held my hand. They both are so supportive for me and I know it's not easy on them. Especially for Kk see her daddy like that! but she sat by my side and held my hand until I was back to normal. She was a huge help.

I got over 8 hrs of sleep and I am fading fast. After lunch I am gonna have to lay down to get rest. My body needs it!
TGIF everyone!!!!

Thursday, July 26, 2012

Test results and another seizure today

So here's an update. I got a call from my doctor yesterday and found that my kidney's are working fine! WOOT!!! That was such awesome news, I was really worried about it. The bad news is that my uric acid is still really high and my depakote levels were low again just like the hospital even after having my dosage raised by an additional 500mg.

So my doctor is going to consult with my nuro and they may have to put me on a higher dosage. So we shall see what happens.

So with the new dosage I have been doing fine until this morning a couple hours after I was at work I feel an on set coming on and had a couple co workers mentioned that I had a dead stare and I started losing thought and focus, Shortly afterwards to became very dizzy and just couldn't concentrate. So I took one of my night meds and since it makes groggy, I left and grabbed the next train home.

On a good note, I received my new medical bracelet which has "Epilepsy" engraved on it. I am super happy to have one now and not have to worry in public of something happening since I have an ID now showing my condition



So I am home, extremely tired but can't seem to fall asleep. Em and the kids are gone and I am just relaxing and getting caught up on Dexter for a bit.

I will definitely be going to bed early tonight

Hope all is well with you guys.

Wednesday, July 25, 2012

New Team Barton Logo

So my buddy put together a new logo for Team Barton and I wanted to share it with you. Let me know what you think.


I happen to really like it and we will be getting shirts with this on it for the "Walk to End Epilepsy" 5k in October. I am really excited about it. 

Tuesday, July 24, 2012

I have updated my Blog with some changes

I have updated my blog with some page changes and a new template design. I think it looks good, what do you think?

Check it out and let me know.

Monday, July 23, 2012

Walk To End Epilepsy - Team Barton needs your help!


Please make sure you join as a team member SOON if you are going to participate with Team Barton. That way you can start promoting it on your social media sites with your personalized link to the team and set your goal of raising funds. 


Please join me by registering as a member of Team Barton at the Walk to End Epilepsy.

To join Team Barton you can go to: http://give.end-epilepsy.org/goto/TeamBarton
If you would like to sponsor me you can go to: http://give.end-epilepsy.org/goto/JonBarton


I am participating in the Epilepsy Foundation of Greater Los Angeles’ annual Walk to End Epilepsy on Sunday, October 28, 2012 at the Rose Bowl in Pasadena because I have epilepsy. Registration starts at 7:30am. 

Your involvement helps support care, advocacy and education, today, while investing in research and hope for tomorrow.
Please join me and register as a member of Team Barton. If you are not able to join my team, please consider making a donation supporting my participation!! Even a $5 donation will help towards our goal. :)

Sincerely,

Team Captain Jon Barton


“Love Your Brain Now” - A Tour to End Epilepsy

I am looking forward to this event and am excited to hear that this bus will be coming through Riverside!!!



The Epilepsy Foundation of Greater Los Angeles is launching a Bus Tour -- “LOVE YOUR BRAIN NOW” which will travel around California. The “Love Your Brain Now” Tour is a unique and creative platform for expanding awareness about the role of the brain and the importance of protecting and caring for the brain in our fight to END EPILEPSY.

Now, here’s the Bus Tour Challenge…

We invite all Walk participants to accept the “Love Your Brain Now” Bus Tour Challenge!
The challenge is simple -- raise $5,000 between now and October 1st and we will:
  • Add your Name or Team Name to the bus wrap
  • Recognize your support in the Tour updates
  • Arrange a ‘photo op’ of you/your team with the bus
  • Try to visit your neighborhood as we travel California! 
By accepting the Bus Tour Challenge you are showing the community that it is time to promote awareness about the brain and epilepsy.

FAQ About the Bus Tour Challenge

What is the Tour Bus Challenge?
This challenge is for everyone participating in the 2012 Walk to End Epilepsy. The Tour Bus will be wrapped in vinyl with the Tour’s logo and theme, ‘Love Your Brain Now - A Tour to End Epilepsy’. We want to include your Walk Team name on the bus wrap so we can “take you on the road with us.” Thus, every individual or Team that raises at least $5,000 for the Walk will be recognized on the wrap of the ‘Love Your Brain Now’ Bus – but you need to raise at least $5,000 by October 1st so the wrap can be designed with your name!
Are there other ways I can support the Tour Bus?
Yes, you can also support the Tour by inviting your employer or a company (companies) you know to sponsor the Tour. Please also consider that some companies match the donations of their employees. To get more information, please download the Tour Sponsor Information and Response Forms to share. You and your company can complete the Response Form to indicate an interest in sponsoring the Tour with a matching gift, inkind donation, grant, and/or charitable donation. This will count towards the Challenge and your team and the corporate sponsor will be recognized on the Tour Bus wrap.
Do I or my donors have to be in California to raise money for the Tour Bus Challenge? 
No, we’re well aware that many of you have family members outside of California who will sponsor you and that some will participate as virtual Walk teams. The challenge is simply to raise awareness and funds to reach a goal of at least $5,000 to support the Tour.
What is the schedule of the ‘Love Your Brain Now’ Tour? When will it start?The Tour will launch from the Rose Bowl during the Walk to End Epilepsy on Sunday, October 28, 2012. The Tour will conclude in Los Angeles on December 7thafter participating at the American Epilepsy Society annual meeting in San Diego from December 4-6. The preliminary Tour schedule can be downloaded here, and the dates and locations are subject to change.
What is the main purpose of the Bus Tour?
The main purpose of the Tour is to demystify epilepsy. In order to do so, we’ve decided to educate people about the brain to promote prevention and early intervention to help END EPILEPSY. The key messages we will be delivering are: (1) protecting the brain can prevent traumatic brain injury and post-traumatic epilepsy, and (2) early intervention to care for the brain can help reduce seizures.
What kinds of activities will you offer? 
At every stop we will be hosting activities for the whole family to enjoy and learn abut the brain. The Tour team will engage the general public at major public events, malls, schools and businesses, epilepsy related organizations, clinics, and via social media. We’ve partnered with the Dana Alliance to provide take home materials about brain safety, preventative measures and brain health. More specifically the Tour will (1) Share educational videos; (2) Distribute “Love Your Brain Now” Action Kits; and (3) Promote and participate in events to raise awareness and funds along the way.
Will you have any materials in Spanish?
Si.
How can I help the Tour in addition to raising money?There are definitely ways you can be involved to support the Tour to be as successful as possible in your town. If you are interested in being a community liaison for the Tour, please contact NJones@EndEpilepsy.org
How can I raise $5,000 before October 1?
Browse the Team Captain's Corner for more fundraising tools and tips! 

For more information please go to http://ee.convio.net/site/PageServer?pagename=Bus_Tour

Tuesday, July 17, 2012

Jurupa Valley's 1st Annual 5k Walk/Run

My daughter and I did the 1st annual Jurupa Valley 5k Walk/Run and it was great! My daughter was there to not only do the 5k but she was there to support me and I am so proud of her. She did a wonderful job. Kaitlynn was right by my side the whole time and I also had my buddy Allen and Tim there as well. My buddy Allen got this shot of me and Kaitlynn finishing the 5k together as we ran across the finish line. This is one of my most favorite pictures of the two of us.





About 300 people showed up for the event, hopefully now that Jurupa Valley is our own community and this being it's first event that next years 5k will get more people and we can get a booth setup for Epilepsy Awareness. I so want to bring awareness to my community.




So we are looking forward to our next 5K in October for "Walk to End Epilepsy 2012" in Pasadena at the Rose Bowl and we have started a team again to raise money for the cause. 


If you would like to sponsor us or join our team you can go to the following links.



To join Team Barton you can go to: http://give.end-epilepsy.org/goto/TeamBarton
If you would like to sponsor me you can go to: http://give.end-epilepsy.org/goto/JonBarton

My daughter is doing this 5k with us and started her own page to raise funds for Team Barton. She's really excited about it and set a goal to raise $200. Here is her link to her page, please help her reach her goal: http://networkedblogs.com/zywDF

K's really excited about this upcoming event and really wants to do her part to get involved and spread awareness for Epilepsy. She's my right hand gal of support and my inspiration to be involved! 


Today's Doctor's Appointment Update




So I went to see my primary today to follow up with my blood test results I got at the ER last Friday and reviewed them with my doctor. My doctors opinion right now is that due to the seizure meds I was previously on (Topamax) may have caused the high levels on my kidney results and my dehydration. Since my Depakote (my new seizure meds) levels where low and I had my dosage upped from 1000mg to 1500mg on Friday he wants to run more blood work this Friday after being on the new dosage for a week to see if my levels improve or not and will also have a urine test. We also discussed my foot and it swelling up and found that it wasn't gout with is awesome news. It's possible tat it was just my body holding fluids oddly or I somehow hurt it in my seizure Friday morning. But my foot is doing allot better.

So based on that and my issue with retaining fluids right now he also gave me a new med to help with my digestive system and will help with my ability to retain what I am eating and drinking.  So I start that today and should notice a difference in the next 2 -3 days.  So I am keeping my fingers crossed!! I also had to do a urine test today and should get those results soon. If I get the same results or worse than the next step will be seeing a specialist. I hope it doesn’t go there, I hope this is something I can easily get past and not have to deal with a whole new issue.  I felt pretty good with my doctor’s thoughts and actions. So we shall see.

So after all that this morning, Emilee took me and the boys out for a nice lunch. It was good spending time with them. They were really good at the doctor’s office while we were there.  
Emilee has been so great lately with taking care of me and her support has meant so much. I adore her ambition to do what she can to take care of me. I can’t wait to get better and be there for her as much as she has been for me.

Thanks all for your love, prayers and support. I truly have a good support foundation in the friends I have surrounded myself with. So here's to getting better and not looking back! 

Monday, July 16, 2012

Trying times....but pushing through

Whew, the last week has been exhausting to say the least. Last Saturday I woke up with the stomach flu and spent all weekend and Monday & Tuesday home. I was kinda relieved that I was home sick with the flu instead of being out because of another seizure. But the week carried on to get worse and yesterday morning I was rolled over onto my back by Emilee as after I showered for work an was getting ready I collapsed in our room and had a gran mal seizure. I don't remember any of it or right before it. This one proved to be probably the worst one yet and it took me awhile to come out of it and I just didn't feel right. I then told Em I need to go to the ER. The last several days I had been having issues with staying hydrated and wasn't able to keep anything in food or fluid wise. I was beyond fatigued. So we went to the ER and on the way I had a petite seizure. The next thing I really remember is sitting in a wheelchair Being asked all types of questions. They quickly got me in a room, and got blood work done right away. My head was killing me at this point and I got some Motrin.




The doctor came back with my results showing I was dehydrated and my kidney levels were high. That's the 3rd blood test I have had with high results but this one we higher. At this point I was feeling better but tired. They then advised me that my depakote level was low, that's my seizure med that I have been on for the last month and a half. I am no longer on Topamax and am happy about that. So they released me and advised to see my PP and Nuro.

Since it was early I called my Nuro when they opened and was able to get in right away and it was recommend to up my current dosage. He was also worried about my kidney levels and strongly advised I go see my primary and get a referral to a kidney specialist. So I now have an appt on Tuesday with my primary. That was the soonest I could get in.

So now the fun part, wth is going on with my kidneys now? Like I need another health issue right now?!?!? They don't think it's an infection because the test results are getting higher each time over the last 3 months.

So sitting here I am reflecting on how I am constantly thirsty and always feel parched. I stared researching online and found some major side affect from Topamax and ending up with kidney issues. So now I am wondering if it's been that medication I was on causing this? I don't know because even before I ever started taking it I was always parched and thought it was because of my IBS.

So this morning I am having some pain in my left back side again, different from my usual back pain and found blood in my urine this morning. Good thing I am going to my doctors tomorrow so I can go over all this with him.

Today I find myself struggling to stay positive about things, but it's coming to a point that it's so exhausting with all of this physically and mentally and it's affecting my job.

As I am sitting here on my lunch break I am just completely wiped out already today. Must keep pushing forward.......



Wednesday, July 4, 2012

Team Barton Needs Your Help!!!!! Walk to end Epilepsy -



Dear Friends,


Please join me by registering as a member of Team Barton at the Walk to End Epilepsy.
I am participating in the Epilepsy Foundation of Greater Los Angeles’ annual Walk to End Epilepsy on Sunday, October 28, 2012 at the Rose Bowl in Pasadena because I have epilepsy and hope to have your support or have you there with me!


To join Team Barton you can go to: http://give.end-epilepsy.org/goto/TeamBarton
If you would like to sponsor me you can go to: http://give.end-epilepsy.org/goto/JonBarton



Seizures can strike suddenly and unexpectedly at any point in one’s life. Seizures steal moments and memories, can change lives, impact development, affect learning and can even result in early death.


About 360,000 Californians have epilepsy.
About 24,000 more will be diagnosed in 2012.
One could be you or someone you love.

For over fifty years, the Epilepsy Foundation of Greater Los Angeles has provided support to the nearly 160,000 individuals with epilepsy and their families in our region. The local Epilepsy Foundation chooses to fulfill its mission by leading the fight to END EPILEPSY and the burden of seizures by focusing on care, advocacy, research and education.


Your involvement helps support care, advocacy and education, today, while investing in research and hope for tomorrow.


Please join me and register as a member of Team Barton. If you are not able to join my team, please consider making a donation supporting my participation!! Ever little bit counts.


Sincerely
,
Jon Barton, Captain of Team Barton!