Just a few months from now it will be a year since I have been diagnosed with Epilepsy and I have to say that without being selfish I have found a calling to help others with their diagnosis. I know I am early to Epilepsy and find it easy to understand but hard to swallow at time. .
This last 9 months has been a twister of a storm I never saw coming. I have lost approx 70 pds, I have found new ways to manage my stress, but regardless of all that, Epilepsy always finds a way to to strike you from an untrained cobra snake. You just never know when you’re going to go done or feel ok where ever you are and that’s the most worry some part of a having Epilepsy, you just never know.
I refuse to give into this disorder, and at time it wipes me out, but at the same time I strike back to take it and place in a situation to share the awareness and speak with others to share my story and them theirs.
I see such a weakness for proper support for this disorder that it boggles me to know that our Government and HealthCare providers look at Epilepsy as a disorder and not a disease so we are over looked on many levels. But if you have heard and read the facts I have seen, Epilepsy is a bigger issue than Heart Disease. So who are we letting in our Government/Insurance advisors run this?
It’s frustrating and I have only been diagnosed last November. I can’t speak of those that have lived with it for 5, 10, 20 years.
This has to change, our voice needs to matter and be strong. Epilepsy isn’t going away until we reach out and get the funds to do the proper research and find a cure This shouldn’t be over looked and be a lower priority that other conditions/Disorders and so forth.
We have a voice too! One that matters, one that needs attention and one that is heartfelt.
We live day to day with this disorder and need a resolution. Who will fight for it? I know I will.
Join the cause to End Epilepsy in any way or for you can. Seek out our local foundation to make it happen.
I am 34 years old stricken with this, am I am the least of concerns when it comes to our nations children.
Lend your hand, support, and assistance to help this cause become one that is effective and deserving.
- ------ Jonathan T Barton